This site is funded by the private investment of Judith and Alan Calder, and is run with no subscriptions or fees. All donations are invested in medical research into Degos Disease.
The information provided on www.degosdisease.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician.
Our Website does not host any form of advertisement.
We comply with the HONcode standard for trustworthy health information: verify here.
This site is listed in the University of Nottingham’s OMNI catalogue of hand-selected and evaluated online medical information.
This site is listed in the National Library for Health. The NLH Skin Disorders Specialist Library is a “one-stop” web resource bringing together high quality, evidence-based information on all of aspects of skin disorders and their treatment and management. The Skin Disorders Specialist Library is funded by the NHS to meet the information needs of NHS health care staff, but is also open to patients and the public.
The Degos Disease Support Network is an associate member organisation of the European Organisation for Rare Diseases (Eurordis). With more than 300 direct member organisations, Eurordis is now recognised and listened to as the European organisation specialised in the needs of patients with rare diseases.
The Degos Disease Support Network is a member organisation of Rare Disease UK, an alliance of key stakeholders brought together to develop a national plan for rare diseases in the UK. It is a joint initiative of the Genetic Interest Group (the UK alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders) and others in response to unmet health care needs of hundreds and thousands of families who currently struggle to get access to integrated care and support from the NHS.
The Degos Disease Support Network is listed in the Organisational Database of the National Organisation for Rare Disorders (NORD), based in the USA. NORD