Events
Future Events
Bungee Jump in memory of Rebecca Edwardson
Kelly Street is doing the bungee jump from the Middlesbrough Transporter Bridge over the River Tees in England on March 29th 2009 at 12.30pm.
“I'm taking part in a bungy jump, and am asking for sponsors to help raise funds to enable research into Degos Disease. This disease took my baby Rebecca away from everybody who loves her, she was only 15 months old. Rare diseases don't get funded by the government, so the only way for research to go ahead is by raising funds ourselves, in memory of my baby Rebecca Edwardson.”
You can sponsor Kelly by pledging the amount on the message board (http://www.degosdisease.com/messages/) or by emailing Kelly direct on kas_mart_15@hotmail.com
Past Events
- Degos Conference 2007, November 9 2007, Boston, USA
Degos Patients at the conference in Boston
(from left: Susan Leuck, Judith Calder, Jane Marzano, Debby Bushey, Lisa Auvil)- Announcement
- Program
- Videos of some of the presentations given
- 1st International Meeting on Degos Disease, March 18-19 2005
Page last modified on 30 July, 2009
