Patients’ Forum

Discussion area for patients. Posts can only be added by registered users, but can be read by anyone.

Topic	Replies	Created	Last reply
Sticky: Forum Guidelines	0	by Fonant 2010-12-07 13:36	n/a
Just checking in to say Hello!	0	by Vanessa de Arce 1 day 2 hours ago	n/a
Tumbleweed again!	2	by Brian 2011-09-24 17:51	by Brian 2011-10-15 15:22
How are you all?	2	by Judith 2011-07-12 18:21	by Brian 2011-07-24 19:53
Heat Allergy	1	by pearly 2011-06-06 11:28	by Judith 2011-06-17 08:31
Symptoms of Degos Disease	1	by Cynthia 2011-05-14 14:14	by Judith 2011-05-14 15:49
Email addresses	10	by Judith 2011-02-26 17:54	by Judith 2011-04-13 16:30
Rare Disease webinar (seminar on the web)	2	by Vanessa de Arce 2011-03-18 16:37	by Vanessa de Arce 2011-03-24 19:46
Thought for today......	2	by Judith 2011-01-21 14:12	by Vanessa de Arce 2011-02-27 17:40
An Announcement from Prof Christos Zouboulis	3	by Judith 2011-01-16 09:23	by Judith 2011-02-01 14:10
Helloooooooooooo?	7	by Brian 2009-10-04 13:24	by Susan Leuck 2011-01-18 00:00
Eurordis wishes you a happy new year	0	by Judith 2011-01-13 17:34	n/a
Eurordis Summer School in Barcelona - who wants to represent us?	0	by Judith 2011-01-06 18:38	n/a
Our Facebook Cause	0	by Judith 2011-01-03 20:46	n/a
Happy New Year!	5	by Judith 2011-01-02 12:57	by Judith 2011-01-03 20:36
Office of Rare Diseases Research (US)	0	by Judith 2010-10-05 19:10	n/a
Registered Users	3	by Brian 2010-04-03 09:17	by Brian 2010-07-14 11:05
Kelly's Article in Chat Magazine	9	by Brian 2009-11-23 17:51	by Brian 2010-07-14 11:01
Please comment online when you read this about Degos disease	5	by Judith 2010-04-07 15:48	by pearly 2010-07-01 11:49
New ideas	3	by Judith 2010-06-10 11:11	by pearly 2010-07-01 11:32
Soccer	0	by Brian 2010-06-29 16:30	n/a
Welcome Back Judith and Alan	1	by Brian 2010-06-02 18:00	by Judith 2010-06-04 16:18
Updated Topic: Registered Users	0	by Brian 2010-04-27 17:44	n/a
New Members	0	by Brian 2010-04-03 09:05	n/a
General Update	1	by Brian 2010-02-21 16:05	by pearly 2010-03-30 15:07