Patients’ Forum

Discussion area for patients. Posts can only be added by registered users, but can be read by anyone.

Topic	Replies	Created	Last reply
Sticky: Forum Guidelines	0	by Fonant 2010-12-07 14:36	n/a
Eurordis	0	by Judith 2013-02-13 13:56	n/a
Happy New Year	1	by Brian 2013-01-12 12:55	by Judith 2013-01-20 12:46
Just checking in to say Hello!	5	by Vanessa de Arce 2012-02-21 19:55	by Brian 2012-09-25 18:17
Tumbleweed again!	2	by Brian 2011-09-24 18:51	by Brian 2011-10-15 16:22
How are you all?	2	by Judith 2011-07-12 19:21	by Brian 2011-07-24 20:53
Heat Allergy	1	by pearly 2011-06-06 12:28	by Judith 2011-06-17 09:31
Symptoms of Degos Disease	1	by Cynthia 2011-05-14 15:14	by Judith 2011-05-14 16:49
Email addresses	10	by Judith 2011-02-26 18:54	by Judith 2011-04-13 17:30
Rare Disease webinar (seminar on the web)	2	by Vanessa de Arce 2011-03-18 17:37	by Vanessa de Arce 2011-03-24 20:46
Thought for today......	2	by Judith 2011-01-21 15:12	by Vanessa de Arce 2011-02-27 18:40
An Announcement from Prof Christos Zouboulis	3	by Judith 2011-01-16 10:23	by Judith 2011-02-01 15:10
Helloooooooooooo?	7	by Brian 2009-10-04 14:24	by Susan Leuck 2011-01-18 01:00
Eurordis wishes you a happy new year	0	by Judith 2011-01-13 18:34	n/a
Eurordis Summer School in Barcelona - who wants to represent us?	0	by Judith 2011-01-06 19:38	n/a
Our Facebook Cause	0	by Judith 2011-01-03 21:46	n/a
Happy New Year!	5	by Judith 2011-01-02 13:57	by Judith 2011-01-03 21:36
Office of Rare Diseases Research (US)	0	by Judith 2010-10-05 20:10	n/a
Registered Users	3	by Brian 2010-04-03 10:17	by Brian 2010-07-14 12:05
Kelly's Article in Chat Magazine	9	by Brian 2009-11-23 18:51	by Brian 2010-07-14 12:01
Please comment online when you read this about Degos disease	5	by Judith 2010-04-07 16:48	by pearly 2010-07-01 12:49
New ideas	3	by Judith 2010-06-10 12:11	by pearly 2010-07-01 12:32
Soccer	0	by Brian 2010-06-29 17:30	n/a
Welcome Back Judith and Alan	1	by Brian 2010-06-02 19:00	by Judith 2010-06-04 17:18
Updated Topic: Registered Users	0	by Brian 2010-04-27 18:44	n/a