Patients' Forum

It is, I guess, a consequence of this site representing such a small population of Degos patients worldwide that we have so few posts recently.

I am leaving the forum open for any patients or doctors to scroll through and see what’s been discussed in the past. Of course, you must please feel free to register and post comments and questions relevant to the disease and potential treatments.

We welcome news of patients and their families, and photos and pictures can be uploaded too,

There is room on the Images page for photos of Degos lesions or of biopsy plates….please add anything you feel will increase our collective understanding of the disease and how it manifests itself in different people.

If in doubt, please contact me: judith@degosdisease.com