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This website has been devised by Judith Calder, a Degos patient in Sussex, England, with the full co-operation and support of
Professor Christos Zouboulis and Dr Athanasios Theodoridis, Dessau Medical Centre, Germany
Dr Peter Coburn, Southlands Hospital, Sussex UK
Dr Lee Shapiro, Steffens Scleroderma Center, Saratoga Springs NY USA
Dr Aixa Toledo-Garcia, The Center for Rheumatology, LLP, Albany, NY USA
Dr Jessica Farrell, Albany College of Pharmacy & Health Sciences, Albany NY, USA
Dr Patrick Whelan, Mass General hospital for Children, Boston MA USA
Dr Cynthia Magro, Weill Cornell Medical College, New York USA
Dr Afshin Borhani-Haghighi, Dept of Neurology, Shiraz Univ of Medical Sciences, Iran
Dr Manfred Boehm, Center for Molecular Research NHLBI-NIH, Bethesda, USA
Prof Maurice Van Steensel, Sch of Life Sciences, Univ of Dundee, Scotland
Dr Noah Scheinfeld, Midtown West, NY USA
All these doctors may be contacted via the Contacts page on this site.
There is information and space for patients, their carers and relatives, their doctors and researchers.
The Degos Disease Support Network is a contact group, a support group and an information hub for those affected by Degos disease.
Medical professionals who are seeking help will find information, links to medical sites and to ongoing research.
As Degos disease is an extremely rare disease, we welcome input from those affected by it. We also welcome donations to help with the running of the Support Network and to assist the research into the disease.