Email addresses
Sunset from our house tonightHello everyone
From time to time I like to contact everyone on the mailing list, but find that some email addresses are no longer valid. If you are not happy to be contacted, please let me know. Otherwise, perhaps you would be kind enough to update your details on this site, and also email me (judith@degosdisease.com) so that I can keep the list accurate.
Thanks!
Judith
Hello Judith,
How are you? My email address is the same….you are never going to lose contact with me!! :-)
I love the photo of the Sunset from you house absolutely beautiful!
I just put a link to my FB page for the Rare Disease Day!
Hope you are well!
Vanessa
XO
Thanks for that Vanessa – lovely to be in touch with you, whether it’s email, Facebook, this forum or whatever.
I wonder if anyone else will respond?
Love to you and the family
J xx
One of the wild tortoises living in our garden
Thanks to Cathy for updating her email address. And it was via one of our Facebook links:
http://www.causes.com/causes/530978
Judith
My email address is the same too. I wish you luck in getting people to respond to you but please keep up the good work, you and your husband deserve knighthoods!
By the way, am I the only person who has had Degos but it just went away and hasn’t returned for about 25 years.? For those still suffering there is always hope as I can’t believe I am the only person who has been cured.
Pearl
Thanks Pearl!
It is SO GOOD to have some sort of HOPE! That must feel amazingly good to have this dreaded disease gone!!
Vanessa
XO
Thank you, Pearl – and it is so good to know that 25 years on from diagnosis, you’re still well and enjoying life. That gives hope to lots of people, I’m sure.
J xx
Hi Judith, I didn’t respond because my email is the same and I continue to get your messages, which I truly appreciate. I’ve linked Degos Network to my FB page as well-actually done this about a year ago. How are you? I was looking at the pics on this site and came across Rebecca again-it just breaks my heart to see her pics up until the month she died.
Again, thank you for continuing this website.
Debby
Great to hear from you on here, Debby. I “see” you on Facebook and it’s good to know you’re there xxx
Hello Judith and everyone.
I have been off line for a while for a number of reasons which are not important here!
Anyway, my e-mail address is bfgreene73@googlemail.com
Best wishes to all.
Nice to know you’re there though! Thanks for email update.
Keep in touch……..
J