Symptoms of Degos Disease

I have been to every Dr. I was diagonised in 2004 with the disease. I have six six leisons on my back and upper arm, which are now just scares. I also went to John Hopkins, in Baltimore, MD, (US) for a Determinologist for the Degos’ disase and he took one look and me and the old scars and told me if I had DD I would be dead by now. I don’t know if I should just go off of what John Hopkins, Dr. Grant Anhalt said my just a visual review on my back.
Other symptoms: I have had MRI’s, MRA’s, etc that show that my right middle ceribal atrery was arrowing. So I went to Jefferson University in PA, USA to have an angiogram done on my brian. The Nerosurgeon was very concerned about putting stints in the artery since my platlet count drops down ot 44,000-88,000 thosand and didn’t think the stints would hold. We did the procedure anyway and he said that everything looked good and that my artery must have a had a spasm. ??? And I am a little nervous of how an artery in your brian just has a spasm.
My hemotolist, Jack Goldberg Univ. of PA recommened to to a specialized Rhemo doctor at the Univ. of PA, because he believes that I have an autoimmne disease. Which is scheduled for May 20th. I now have another appt. with another Avanced Gastro on June 21 and the nurse just read off that I have chronic hepatitis. Besides the dizziness, blurred vision that I get everyone other weeek and the exhaustion, is anyone else experiencing any of this? Sorry for the misspelling and if any can tell me if they have any of these symptoms, please share. I am so frustrated. Thank you! Cindy