Just checking in to say Hello!
Tue, 2012-02-21 18:55
I just wanted to finally check in to say hello!!!
Hello Judith!!! :-)
I finally have my computer working (it broke down on me just before Christmas ;-( ) But finally my tech husband was able to fix it for me!!
I hope everyone had a great Christmas and New Year! I can’t believe we are already at the end of February!
Was curious to find out more about the link you emailed about some interview for some new doctor series, I wasn’t able to look into it at the time. Do you know if anyone did follow it up, and if they are still looking for someones story?
I hope all is well with you and your family!
Lots of Love!
Mon, 2012-02-27 19:35#1
As far as I know, the TV producer is still interested in making one of those medical detective shows about Degos disease. Why not give it a go? Let us know how you get on. I know some of the doctors have contacted him.
Love J xx
Sun, 2012-04-01 21:00#2
It's been awhile
So sorry to have been a stranger to our site! I had a new Degos patient contact me this week and I’ve connected her to Judith and our website. She’s so scared. Brought back memories of when I was first diagnosed. She has no support from her doctors and so many questions. She lives in Virginia (USA). Are there any other patients out there close to Virginia? If so, please identify yourself so I can hook her up with you! Thanks. Debby
Thu, 2012-07-19 03:51#3
We are in Louisiana. My
We are in Louisiana. My son-in-law has Dego’s. I contacted a doctor in Germany though I can’t remember her name and she gave me information to contact a doctor in Massachusettes. We did and he asked for all medical history so we sent that. He got in touch with my daughter last week and said he is studying the medical records and is trying to get him in the hospital there. I am praying for that to happen soon and everyone who has it is in my prayers.
Thu, 2013-10-31 14:24#4
Would your son-in-law be interested in participating in a study in Maryland? I am going to be involved and the doctor heading this study at NIH asked if I could find some more Degos patients willing to participate. Please let me know. My email is: email@example.com. Thanks. Debby
P.S. How is he doing?
Thu, 2012-07-19 03:58#5
The doctor in Massachusettes’
The doctor in Massachusettes’ name is Dr. Whaleng. Anyone know him? By the way Debby this site is awesome! Thanks for creating it.
Tue, 2012-09-25 17:17#6
Hello Peggy, Welcome to the
Welcome to the Degos disease forum. The website was set up by Judith Calder which I assume you have communicated with?
Have you any update on your Son in Law?
Mon, 2013-07-01 00:55#7
Hey Peggy, I didn’t create this-Judith Calder did and she’s fantastic. She’s from England/Africa-lives in both places and I got to meet her in Boston. She’s done so much for all of us.
Fri, 2013-11-01 13:20#8
The doctor you’re referring to in Mass General is Dr Patrick Whelan. He participated in a conference which included talks on Degos disease in 2007. You can find videos of the talks on this site if you wish to know more.
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