Mary’s Story
Hi, my name is Mary, I am 38 years old
and live in the Chicago area. I was diagnosed with Degos in 2002 — August
to be exact. After a year of numerous medical tests and exams — I’m tired!
My medications include 325 mg of aspirin 1 x a day, 50 mg Dipyridamole 3 x’s a day, 400 mg of Trental 3 x’s a day, and 40 mg shot of Lovenox 1 x a day — that’s just for the Degos, I also have numerous allergies, asthma, and acid reflux disease (the ulcer is healed hopefully). I’m not sure how many skin leisons I have, but I do have a couple in my colon and the arteries in my gut area are narrowing. To be exact — Focal stenoses of the celiac trunk, origin of the superior mesenteric artery, and multiple hepatic artery stenosis. As well as, rectal artery stenosis. Through multiple blood tests, they have discovered that there is a problem with my platelets — they are abnormally large and sticky. I have increased sensitivity to epinephrine (marked) and ristocetin (mild) — in just, problems with coagulation.
As of today’s date I’m tired of my doctors and the lack of knowledge. I am planning on consulting the Mayo clinic in the near future.
I actually feel fine except for sinus problems and the need for sinus surgery — which the doctors don’t want me to have — (risk/benefit ratio is not in my favor). I am looking for answers that just don’t seem to be available.
Page last modified on 29 July, 2005
