Recent posts

Type Title Author Replies Last Postsort icon
Forum topic Welcome to new members Judith 1 2014-03-17 08:31
Forum topic Update Julia 3 2014-03-11 22:17
Forum topic Rare Disease Day 2014 Cheryl Todd 11 2014-02-27 08:04
Forum topic Spotty and Proud Julia 2 2014-02-06 09:20
Forum topic Thank You for Your Welcome edupont1 4 2014-02-06 05:31
Forum topic Website Brian 1 2014-02-05 20:47
Forum topic Thanks Cheryl Todd 2014-02-05 20:26
Story Debby from Madison, Wisconsin, USA Judith 2 2014-02-05 07:06
Story Ernie, by Sue DuPont, of Albany, NY Judith 2014-01-29 15:52
Forum topic Time Warner Cable News Articles Brian 8 2014-01-29 15:44
News Time Warner Cable News: "Symptoms of deadly Degos disease can be overlooked" Judith 2014-01-17 17:33
Forum topic Sending samples to Germany Cheryl Todd 5 2014-01-13 05:13
News Another bid for the painting Judith 2014-01-06 18:42
Forum topic Happy New Year Everyone Brian 2 2014-01-05 18:54
Forum topic Extreme hot weather aggravates Degos? Julia 2 2014-01-05 18:33
Forum topic Donation for Artwork Brian 2014-01-05 18:14
Forum topic Treatment Options as a New Patient Julia 2 2013-12-31 01:46
Forum topic Sad news Judith 4 2013-12-31 01:42
Forum topic Merry Christmas Cheryl Todd 5 2013-12-31 01:40
Story Julia's story Judith 5 2013-12-29 21:22
News Great opportunity for Degos patients! Please read.... Judith 2013-12-27 15:31
Story An update: After 23 years since diagnosis Judith 2 2013-12-23 10:00
Forum topic Happy Christmas, happy holidays Judith 2013-12-12 15:03
Story Cathy from Chicago, USA Judith 4 2013-12-04 17:57
News Eurordis newsletter Judith 2013-12-04 10:40
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